Category Archives: Advocacy

Autism (Self) Advocacy = Best Advocacy

I want our social media to be a safe place for persons living with autism. Here, I want to discuss comic books, education sciences, safety, and self-worth. My goal is to offer hope by invoking these topics, and providing positive examples.

Autism advocacy must evolve, because society always changes. However, our path forward seems foggy. In our household, we have two individuals with two different expressions of autism. Aside from kindness, love, and patience, “autism advocacy” will mean many different things under our roof.

Therefore, I am shifting my focus about autism advocacy. I will begin more self-advocacy and self-disclosure. You are invited along for my journey. These experiences will unfold in future blog posts, videos, and comic books.

An important and lengthy telephone call helped cement this direction. Talking with our artist, Sky Owens, he posed an important question: do we want Face Value Comics to be a socio-political soapbox, or a kid-friendly story about a hero like themselves? Why would an autistic person choose our comic book over any other title? Readers expect comic book stylized action sequences, so what abilities, motivations, or personality makes the Zephyr a hero to kids with autism?

As we expand our comic book line, these questions help remind me of my original goal: kids need heroes like themselves. This means curbing my own misguided self-righteousness against any number of specific social ills. Instead, larger and more relatable arcs can be represented.

In future blog posts, I will likely ask very candid questions. Make no mistake: I seek thoughtful answers, not conspiracy theories, political rhetoric, circular answers, nor “alternative facts.” With some questions, I will certainly appear unintelligent. I am. The longer I fight for autism (self) advocacy, the more I realize how much I do not understand. Aren’t some problems with autism tied to misunderstanding unwritten social expectations?

Our world changes daily. Information doubles exponentially. How do we juggle real life demands while being autism advocates? I submit self-care and self-advocacy are our best achievements. At the end of each day, being our best selves is the best form of advocacy anyone can do. I cannot address nor imagine what your “best self” is; only you and your loved ones can help. As for me, I ask you to follow me as I (re)explore autism self-advocacy. Together, we can learn. Together, we can be equals, knowing we try our best to be our best.

myra-z2

We’ve finished twelve pages of our next comic book. We have clear examples of emotive facial expressions, villains coded by color gradients (“Cool” colors = good; “Warm” colors = bad), PG-graded action/combat situations, steampunk imagery, and heroic endings (or cliffhangers). We anticipate a release this spring, and will continue to keep our fans apprised of news.

Welcome, Betsy “The Boss” Devos

January 19, 2017

Betsy Devos’ nomination and (likely) confirmation as Secretary of Education ushers in a new era of autism advocacy. Many autism advocates malign Ms. Devos’ inexperience, lucrative political campaign contributions, and misunderstanding of IDEA. However, I welcome these obvious flaws to a candidate overseeing (autism) education. History is on our side. Specifically, I point to:

Brown v Board of Education, and the power of litigation to redress social disjunction.

To be clear, nobody really “wins” any lawsuit. Presumed damages have occurred, we resurrect painful memories in court, and lots of money goes to shark lawyers. What other options might we have before filing suit?

Ask Hillary Clinton the value of popular votes in an election.

Ask #BlackLivesMatter how many African-Americans still suffer police brutality.

Ask Planned Parenthood how well 78,000 signatures persuaded the Speaker of the House.

I believe our advances for inclusive education, employment, healthcare and housing will fall flat if we plan to reinvent broken wheels. I’ll invoke the definition of “insanity” and compare our advocacy techniques to other failed examples. We need a new approach under a new political administration. Having obviously-flawed candidates, like Devos, helps us.

By his own words, President Trump does not understand autism. I doubt Devos understands autism, based on her confusion about IDEA. We’ve no openly-autistic representative in Congress- none. If we believe billionaires lead our county, we must also accept how well they fear and know the word, “lawsuit.” Many build and protect their fortune and influence on this word.

If we cannot have discussions about autism with autistic leaders, we must use language our leaders know. “Charity?” “Compassion?” “Empathy?” “Inclusion?” Do these words best describe Trump or his Education nominee? We may as well speak Japanese to them, but we have history on our side to invoke business terms. “Lawsuit” means action.

I’m waiting for 2017’s autism-based version of Brown v Board of Education. This is how we slay the giants of misunderstanding- one, well placed lawsuit to destroy their credibility and strip them of misguided power. We strike a blow against their fortune now and in the future; will organizations readily side with someone named in a SCOTUS lawsuit? My approach is non-violent, doesn’t require a large following, leapfrogs media value, and is multicultural in acceptance and execution. We skip what has been tried, and has failed. If we’ve had the presumably best advocates before Devos, I question the quality of our advocacy today. Devos gives us the best recourse for positive change if she doesn’t do a good job. If she fails us, like many suspect, I’ve outlined a peaceable solution using the foul language of the Economic Elite.

Please, give us Devos. I hope she does an excellent job. If not, you call your Congressional representative; I’ll call a (fame-and-fortune seeking) lawyer, of which there are more than Congressional representatives. Which phone call will affect the most positive outcome? Which call will force change? Which call will make Devos shake in her Pradas?

Gearseeker Serpent & Autism Acceptance

What does autism acceptance look like? Will we need a celebrity proclaiming it via social media? Will an elected official – someone who is not autistic – pass legislation mandating said acceptance?

Playing a collectible card game (and my friend, Trav) helped teach me something new about autism acceptance. Please don’t become distracted by too many details of this collectible trading card. Gearseeker Serpent means something to us as autism advocates.

gearseekerserpent

Copyright/Trademark Acknowledgement: Everything about GEARSEEKER SERPENT belongs to Wizards of the Coast, except my interpretation.

Apparently, I can summon this creature faster if I have help; specifically, lots of artifacts lure him into play. I doubt I can play this card on my first turn of the game. How about Turn Two? Is Turn Four reasonable, or too late? I begin to deconstruct the perfect scenario in which I see Gearseeker Serpent devouring my opponent. Now, build to this goal.

Here’s our lesson about autism acceptance, from Gearseeker Serpent:

BEGIN WITH A VISUALIZED GOAL IN MIND.

What is “autism acceptance” to you? What may have happened to encourage others’ acceptance? Will you need help? How much help do you think you’ll need, and when will you need help? Deconstruct the perfect scenario in which you feel most accepted, and identify those incremental steps towards tolerance. Now, built to this goal.

Without specific goal setting, we may lose focus. We might fail to acknowledge necessary early steps towards our goal if we only focus on the END GOAL. Others will liken us to some Greek Myth, whereby we gluttonously demand more acceptance, while ignoring acceptance growing around us, forever self-tormented. Stop demanding global, ephemeral autism “acceptance,” and develop your goals towards that result. Cultivate strategic planning, ask for help, and autism “acceptance” will happen.

Otherwise, Gearseeker Serpent and the weight of unfulfilled should-isms threaten to crush us individually and collectively. Please share your specific examples of autism acceptance goals in the comments, below.

Prophetic Autism and 2017 Goals

Face Value Comics cannot be your ‘opus,’ because it suggests you’ve nothing more to give.

My wife, Angela, shared her hopes for me as 2016 closed. In this blog update, I want to share more goals with you. Will you help keep me accountable for positive autism advocacy?

What content would you like to see from an adult living with autism? Please feel free to review past blog posts, including one where I predicted a loss of civil rights for individuals with autism. Additionally, I outlined a tax-free way to add $1k for autism-based classroom instruction. As a former professional helper, I discussed an airtight strategy that’s been 100% funded by third-party insurances. I shared how facial feature recognition helps me navigate social situations, too.

I also enjoy comic books, including writing script. In 2017, we debut a smaller story and new characters: Quantum X, in Outfox Magazine. Have you subscribed to their autism-friendly publication yet? Here’s our story cover image:

quantun-x-cover
Cover Art for #1 Quantum-X. Fantastic Art by Sky Owens!

However, I also experience some significant health concerns for which I receive professionally-adequate treatments. Despite having nearly three years of script outlined, I cannot remember what or why I wrote what I originally did. Sometimes, I have no memory of many things, so recording my goals helps increase accountability. When I feel too ill to write in depth, I’ll share why, and how I’m trying to overcome a specific challenge.

As we discuss autism, I want to remain positive; edge-lords and trolls need not apply. As I try certain self-improvement goals, I realize how damaging blame and doubt becomes. Instead, let’s remember how everything outlives us on the Internet. Together, we will be a solid leadership resource for increasing autism acceptance. Follow me, and be sure to leave a suggestion for an autism topic in the comments section!

I will write more…next time.

–Dave

Why we’re angry, dear Rosie…

Dear Ms. Rosie O’Donnell:

More than a week passed since we last chatted, albeit one-sided, about autism advocacy. Our fans wish you roaring success with your upcoming performance, and hope you are well. If people read anything more recent about you, I think many would be alarmed by the outpouring of hate directed at you regarding your armchair diagnosis of Barron Trump. We needn’t add fuel to that fire. Instead, I’m offering insight as a fellow rights activist and (self) advocate.

If people are angered by your lack of credentials to offer a diagnosis, I think their anger is misplaced. If people dislike you because of your own open identity, we aren’t likely to solve homophobia in this blog post. More importantly, I’m not sure you – or anyone who flippantly diagnoses someone with autism – understands the real damage.

You betrayed us, Rosie.

Within the autism community, many of us struggle with implied, unwritten social cues. However, most of us grew up and learned about the Golden Rule: Do unto others as you’d have them do unto you. Rosie, you broke that rule.

Spin your dialogue. Would you appreciate someone from the autism community saying another person was obviously gay because of how they look for thirty seconds? Even if that person’s experience and vigilance within the LGBTQ community would lend some credit to observations, is it anyone else’s right to out them as gay? If this approach is not okay with you, why is it okay for you to do something similar?

Hypervigilance with your own daughter’s autism diagnosis may lend you small credit, to recognize symptoms. Being good at computer work or mathematics makes someone autistic as much as (insert LGBTQ stereotype, here) makes someone gay. We fight hard to correct social misperceptions; please don’t add more misdirection.

We could presume you have nothing but benevolence towards a man and his family. Refresh my memory: is this the same man and his family whom you battled on Twitter during the Presidential Election this year? Do you doubt Barron Trump will have the absolute best medical care as the son of the United States President-Elect? Do you think you know better than a physician, Rosie? You act like you do.

…and that’s why people feel anger. May I offer a solution? Tweet how your intentions were born from compassion for a young person. Start a discussion about his father’s lack of understanding about autism, and the need for more openly autistic legislators and representatives. Share how you may have mourn(ed) Dakota’s lost potential following an autism diagnosis; we’ll understand and work through this very common grief with you. Invite more advocates to work with you, and stop making our advocacy work harder in 140 characters or less.

Let’s have tea next week, okay?

Be well and break a leg,

Dave Kot

Playing by Your ‘Elf

Dear Santa Wil Wheaton,

During the holidays, many eager games want new toys. As a gamer myself, I enjoy watching episodes of “Table Top.” We play many similar games, and I wonder what other experiences we share.

At first, I researched what single-player games you might have reviewed. While played with a bunch of friends on Table TopZombie Dice can be a brief yet fun distracting game. Recently, I got Dungeon Roll, which also can be played as a single player or with a small group. Do you review any other single-player games? Next, I began (re)reading your blog. Again, we seem to have similar ideas about civility, government, and, well, hobbies like gaming. I also appreciate your candor in addressing mental health, including anxiety and depression. Do you understand autism, too?

Here’s what I want for the holidays, Santa Wil: May we chat about our shared interest of games? Specifically, I’d like to steer the conversation into solo game play, for individual fans of our shared audience who may not easily find fellow competitive gamers, or who otherwise prefer singular play. How many more people with anxiety, autism, and depression could find a healthy outlet by playing more games- even single-player games? Later, we can debate the merits of decision making, organization skills, etc. that some games may offer a single player. Please message us through this blog post if you’d like to continue this idea.

I’ve been a good boy, this year, Wil. I’ve played new games, and am writing more comic books, too. An opportunity to collaborate on behalf of more gamers with mental health social challenges would be a wonderful way to wrap-up 2016.

If any elves might have been reading over Wil’s shoulder (or Wil himself), what other single-player games might you or readers suggestion for their loved ones with autism, anxiety, or depression? This season, let’s presume greater competence for more people to play more games!

Be well,

Dave Kot, Author at Face Value Comics – The World’s 1st Featured Comic Book Hero with Autism

DISCLAIMER: I am in no way affiliated with any of the games, pictures, or websites linked or referenced; those references, aside from Face Value Comics, are not connected to me and are their rightful owners’ intellectual property, copyright, trademark, etc.

Diarrhea and Low-Functioning Autism

After Thanksgiving dinner, I had diarrhea.

This example may give some readers pause as they flash signs of contempt or disgust. However, most people share a personal understanding of brief diarrhea. Exact causes may be difficult to pinpoint, but usually involve complex chemistry of fluid imbalance. Other factors, like stress, may warrant consideration, too. Still, most people can empathize and sympathize with this gastrointestinal challenge. In polite company, we refrain from sharing our toileting experiences. This is an unwritten social rule. I contend how diarrhea may only momentarily detract from our daily routines or work performances, though. As filthy as diarrhea might be, we understand it well enough from our own experiences, and still dislike addressing it. I wonder how proud actors feel whilst filming commercials for an over-the-counter anti-diarrhea medication.

Unconsciously, we might assign those negative images of watery feces to the person having diarrhea. We give the ill person distance, to avoid contracting diarrhea ourselves. We encourage bed rest, medication, and other things which completely remove them from future conversations until WE think they act or feel …

…wait for it…

“normal.” Despite our intimate knowledge of diarrhea, we automatically shun anyone who currently experiences it. We devalue their contributions because we assume their illness also affects mental alertness or other skills we otherwise expect. We seek to avoid contamination ourselves, and scrub our hands with anti-bacterial soap. Flush our relationship until the illness passes. We may want our friends to rest, or we may want nothing to do with a stranger who ate gas-station sushi.

Why are we so dismissive and lack compassion for an experience we likely have all shared and at least conceptually understand? Couldn’t a person with diarrhea still draw, still code, still do a lot of non-physically challenging things of value? I believe this person can add value. However, society caps their presumed potential until their diarrhea passes and they “act” less of an uncomfortable threat to our societal expectations.

1 in 68 persons has autism, and I believe more than this ratio have had diarrhea. Not as many people understand autism as well as diarrhea. Making understanding more difficult, we ascribe words like “low functioning” as a description. No, we may not come out and say “low functioning.” Instead, we use words like “high functioning autism,” which immediately supposes its counter-point: low-functioning autism. Likewise, we avoid invoking the word, “diarrhea” because we know peer judgement follows. Instead, words like “upset stomach” or “wiped out” seem more polite. What is a nicer way of saying “low functioning autism?” Yeah, there aren’t any, and you’re foolish to think aggressors won’t prey upon this distinction. Even worse, I contend some people with “higher functioning autism” also know how to throw bully-wolves off their scent by making such comparisons.

“I don’t have diarrhea; I’ve a tummy ache.” “I might have autism, but it’s ‘HIGH functioning autism.'”  Both sentences desperately seek acceptance, and use language to seem more approachable. I believe most people know what diarrhea looks like, but doubt many of these same people could identify two clinical needs which warrant a lower functional categorization. Instead, society fumbles with perceptions over what “low” functioning might be, even if their examples seem disconnected to autism. This becomes a dangerous enterprise, adding more doubt, myths, and missed opportunities for our community as a whole.

Instead, leave the adjectives “high functioning” and “low functioning” autism to the clinicians who crafted the words for their own medical processes. Stop manufacturing more reasons for polite society to fear or further distance themselves from an impolite conversation. As a collection of human beings, we cannot have easy discussions about loose stool, so why do we think invoking high/low functionalities will improve understandings of autism without similar contempt, disgust, or fear of known diarrhea?

Please add to this conversation if you have a counter-point. I boldly contend that we should erase the use of autism functionalities outside of our clinicians’ offices. Someone saying they’ve “high functioning” autism is really saying, “Yes, I’m autistic, BUT please don’t confuse me for someone with low-functioning autism, because I know you won’t give me any chances otherwise.” I dare anyone who identifies as having “high-functioning” autism to say it WITH a person who has “low functioning” autism also present, and then point to that person and call ’em “low functioning” to their face. OWN that glorified trap, if you must insist on its non-clinical use. Outside of educational/medical care, can you name any situation where identifying an autism functionality is helpful to the individual, the recipient of that information, or “polite” society (the same group who cannot stomach talks of diarrhea) as we seek greater acceptance?  Nah, we won’t have acceptance from neurotypical folk until we can accept ourselves.

Dear Rosie…An Open Letter about Autism (Probably Part 1 of Many)

AN OPEN LETTER TO ROSIE O’DONNELL, PART ONE

Over the Thanksgiving break, I read about Rosie O’Donnell. Via Twitter, O’Donnell acknowledges how her young daughter has an autism diagnosis. We applaud her bravery to seek a definitive diagnosis to explain whatever challenges Dakota may have. Furthermore, we welcome O’Donnell as a staunch advocate for positive change.

Millions love Rosie O’Donnell as a comedic entertainer. We watched her spar with (now, President-Elect) Donald Trump through social media. Obviously both O’Donnell and Trump have each others’ attention and respond in kind.

Now hypervigilant about autism symptoms, O’Donnell took to Twitter on November 21st and asked a question related to autism. Her tweet is embedded here, but I chose not to activate the video link; the video itself is not today’s topic. Rosie O’Donnell’s influential advocacy role as a loving caregiver to someone with autism is our topic.

rosiebarron

Question: Name someone – anyone – who can elicit a passionate reply from our soon-to-be Commander-in-Chief? Is O’Donnell at the top of your list, after crossing-out (untrustworthy) media sources?

I appeal to O’Donnell’s love for her daughter on behalf of 3.5 million United States citizens living with autism. Use your advocacy skills, love, and Trump’s attention to start a non-confrontational discussion about autism. People will (and already have) listen to you. You’ve more ways to continue said campaign than most readers’ resources pooled together.

Everything lives forever on the internet, so I caution O’Donnell from referring to any child’s possible health concerns without parental or their own consent. This admonition includes referencing Barron Trump, too. I believe O’Donnell is: 1) NOT a certified medical professional trained to diagnose autism, 2) NOT Barron Trump’s physician, and 3) WANTING to start a positive autism discussion at the highest political level in our land. Therefore, I lament her willingness to make an armchair diagnosis about any person’s kid, especially without their consent or desire for such benevolent inquiries. Within the autism community, we fight against neurotypical stereotypes, and these include “symptoms” others may see for less than thirty seconds. Like fast food, social media gives us a flash of reality and expects us to digest it just as easily as a legitimate source of nourishment.

Instead, I offer to walk with O’Donnell along her autism journey. I invite her to chat with me, and I’m sure she will if motivated. I also call upon her to do some positive things about advocacy. Follow me.

Step One:

Acknowledge social problems experienced by persons living with autism. These include abysmal statistics in unemployment, underemployment, long-term housing, medical insurance coverages, and educational material. Until meaningful accommodations are met, persons with autism will be seen as social bottom-feeders beyond the playground. Will you please address this problem, Ms. O’Donnell?

Step Two:

May I call you “Rosie,” please? All of this “Ms. O’Donnell” language seems far too terse when we speak of compassionate service.

Step Three (This is a BIG One!):

Join me in lifting the autism-community boycott of Autism Speaks. Since the passing of co-founder Suzanne Wright, Autism Speaks seems poised to lead by mindful education. Else, they may feel compelled to return to fear-mongering and perpetuating myths about autism. New leaders deserve a chance – isn’t this what President Obama said? Let’s align ourselves with Autism Speaks as the largest U.S. Autism-centered non-profit organization. Obviously, our boycotts did not work, but we do have their attention. Are we willing to be as accepting of others (including new people who lead Autism Speaks) as we claim we want other people to be of us?

Step Four:

Buy a copy of Face Value Comics. Actually, get it for free, here: http://www.drivethrucomics.com/product/124765/Face-Value-Comics

Two years ago, I opted to remove financial constraints from people interested in our comic book. As the world’s first comic book to explicitly feature a hero with autism, we got a lot of attention. We won international awards and enjoy a world-wide audience. Our inclusion of facial feature recognition earned us a positive review in an accredited medical journal as an educational and therapeutic enterprise; we’re the only comic book to be reviewed in a medical journal, too. Pay what you want.

Step Five:

Please, call me Dave. When I hear “David,” I look for my mother, who is likely going to yell at me for something I (probably) did.

Step Six:

Join us in our grass-roots advocacy. We’re just everyday people, but we self-published a unique comic book. We’ve been on the NBC Nightly News, medical journals, and have spoken to the PA and US Congress about autism as subject-matter experts. We would welcome you to share this advocacy spotlight, because I fatigue easily due to my own health challenges (including autism).

In April 2017, in Philadelphia, we debut our latest comic book for fans. As we finish editing and storyboards, we welcome your input into how autism might be portrayed. We seek clear understandings, and to maintain our family-friendly content. You started a serious conversation- will you continue? Do you need or want our help? Have you ever been to a Comic Book Convention as a fan?

Step Seven:

Continue the conversation. I have other strategies we can discuss about positive autism advocacy and acceptance. I also have several Trump-focused Tweets suitable for sharing, that further push this agenda. Otherwise, fans and myself risk seeing you as a fair-weathered advocate for equality and human rights, choosing how and when to stand up or give up based on convenience. Autism is a life-long diagnosis and challenge; will your advocacy, compassion, and interest extend as far?

My requests may take some time to ponder. Contacting me may take time. Let’s decide to chat again in a week, okay? Rosie – please visit and follow us on Facebook, (https://www.facebook.com/FaceValueComics/?ref=bookmarks) or on Twitter (https://twitter.com/FaceValueComics), and send us a message.

Be well,

Dave Kot, an adult with autism and co-parent to a lovely young lady with autism

Get off Your A$k, Government: Autism Education Reform

Dear Pennsylvanian Congressmen Mike Doyle, Scott Perry, and Seth Grove:

My name is Dave Kot, an autistic constituent living in York, PA. Perhaps you remember me? We met to discuss small business practices, and educational/therapeutic implications behind our internationally-award winning comic book. Now, I offer to help our government during a time of budgetary needs, when special education funding stands at risk.

Maybe I lost your interest with words like “autistic” or “comic book.” Typically, these two things wouldn’t seem complimentary. Certainly, most people would not opt for either adjective as a default prerequisite. Maybe you don’t want my help, and prefer to banter between Governor Tom Wolfe while our state budget – and intended beneficiaries of ear-marked funds – hang in the balance. I ask you to presume greater competence from an adult with autism, and continue reading for a probable solution.

Digital Camera
My apologies for the format of the photograph- I will upload a new picture of the award in the near future, showing its spiffy wood carvings!

This picture shows me holding an international award from Canada, which I received on last week. It recognizes my application of science to assist young readers with autism identify others’ emotions, to improve some social situations. Don’t you find it easier to negotiate with people who smile instead of scorn? Think back- who taught you what anger, or fear, or disgust looked like? Our comic helps readers identify these emotional states by themselves or with help. NBC Nightly News featured this work last year.

However, our non-profit mission goes far beyond comic books. Last year, my scientific application of facial feature recognition was recognized by the academic community. Unsolicited by me, an accredited medical journal (Journal of Autism and Developmental Disabilities) warmly reviewed the comic for my claims and validated my doctorial studies. To my knowledge, ours is the world’s first comic book to be critically reviewed by unbiased third parties for inclusion in a medical journal.

Do I have your attention, yet? Does it matter that I am also clinically diagnosed with autism (technically, “Asperger’s Syndrome”)? Do years of graduate and post-graduate work matter? Do several international awards and prominent global grass-roots leaders within my circles matter? Does inclusion in a medical journal matter? If none of these things matter to you, I lay my ‘trump’ card (no relation):

Join us. I’ve developed fantastic relationships. This spring, the Dover Area School District Supervisor (Kenneth Cherry) and Supervisor of Special Education (Dave Depew) and our team will meet. We will begin formulating special needs curriculum using the exact same scientific theory about which I wrote. Does this invitation interest you? How about now, Congressmen:

Last spring, the Dover Areas School District School Board unanimously voted to adopt facial feature recognition (read: the science behind our comics) as part of its special needs classroom initiative. Some people may think, “…what does that vote have to do with me?”

Expert analysis by people I consider smarter than myself predict how implementation of facial feature recognition could be used to GAIN about $1,000 to $1,500 PER classroom PER district PER year. Would you like to know how? This answer will require an in-depth presentation of materials, like my wife and I offered the Dover Area School District. Suffice to say, this net increase to special education can occur without adding ONE cent to the typical taxpayer, and insulates itself against future federal or state budget changes or cuts. Over time, analysis suggests how Dover Area School District will be the first school district able to offer graduating students with special needs a tax-free grant for further education or other personal costs. Imagine- just by implementing my well-vetted research, we could offer a high school senior money for college textbooks, or a new suit for job interviews, etc. We also push school choice by offering competitive education.

Would you prefer to affect positive change for students and families with special education needs, or do you prefer the political stalemate and barbs between yourselves and Governor Tom Wolfe? Please make no mistake- I am largely non-political and don’t care who gets credit for this work. We can and should share in good news, regardless of political affiliation. However, things could be done faster with Pennsylvania’s Congress (and the U.S. Congressional Autism Congress?) in tune with this proposed goal, to replicate it wherever it may be useful.

Congressmen, I invite you to witness scientific, economical, and educational change poised to happen under your watch in your respective areas of governance. I thank you for your assistance in my business matters, your praise for my work as an adult with autism, and now offer to pay it forward to help our community and state. Will you accept my invitation and lay down rhetoric for real change? Will you trust a person with autism who offers valid options for change? In closing, I’ll simply invoke the name of Temple Grandin- a fellow academic professional with autism whose autism allowed her to see things differently and whose courage changed an entire way of business. I am not Temple Grandin, but I am Dave Kot. I can help you help Pennsylvanian and United States’ special education programs.

Please continue the discussion via this social media source, or email us at: Angie@FaceValue.US

Thank you for your time and interest, and Happy New Year!

Be well,

Dave Kot

Open Letter to U.S. Congress

Dear Congressmen Doyle and Smith, and Respected Members of the U.S. Congressional Autism Caucus:

I write to you as an autism self-advocate. While my local representative, Congressman Mike Doyle (Co-Chair), and I met this summer, I bring new concerns to you all.

Recently, price spikes of certain prescription medicines caused alarm from the economic and health care sectors. Now, without prediction, some health care providers must cut generic medication from their formularies because of inflated cost. Some doctors prescribe medications to treat acute symptoms or other diagnoses for people with autism. I would like to know how the Affordable Care Act is insulated against future cost cuts of very commonly prescribed medications.

Congressmen Doyle, I’d like to revisit your invitation to meet and address more of your colleagues. Since we last met, I’m happy to share how my research into facial feature recognition for persons with autism has been vetted in a scientific medical journal! With so many budget decisions before our legislature, perhaps now might be a time for me to discuss the (special) education cost savings/surplus model with you; it’s the same model that received unanimous votes from our local school district this year.

Finally, I ask for an opportunity to grow beyond my comfort level. I am just a man. Nobody expected how a comic book would thrust me into international spotlight for autism awareness and acceptance. I’ve a social responsibility to use my fame and (self) advocacy mission for good use. For example, I’ll share this letter through all of our social media outlets, as an example of how to address civil leadership. If/when I meet with you, may I bring some friends who would quell my anxiety and lend their voice to mine if I tire? (After this letter hits Facebook,) May I bring one-thousand like-minded friends discuss the future of autism advocacy? I encourage everyone reading this letter to seek healthy relationships between civil leadership and autism advocates at any level.

Be well,

Dave Kot