Category Archives: Self-Advocacy

Wanna Make a Comic Book? My Invite, Please RSVP

Are you                Yup, I’ve whitewashed this blog post with a secret message! We’re going

Ready?                 to play a game, too. What kind of game? Well, I already gave you a clue…

Grab your pencils, and let’s do this thing!

Have you ever seen a white raven? If you saw a dozen ravens, how many would be white? 100 ravens? 1000 ravens? Hempel’s Paradox highlights problems of understanding based on faulty observations. In turn, these observations skew our perception of reality. Despite our best efforts, you and I are unlikely to see an albino white raven living in the wild, but they DO exist.

Like the Spanish Inquisition, nobody expects a white raven.

I want to change this social perception. Pffft- I know next to nothing about birds, though. I do, however, have personal and professional understandings about autism, mental health, and comic books. In hindsight, that’s an odd set of tools, huh?

If you have autism or mental health challenges, YOU are my audience. I contend few of us are published artists or writers. When I wrote a simple comic book, I received a disproportionate amount of media and scientific attention. In my mind, writing a comic book as an autistic adult shouldn’t have been international news. I was a white raven in the minds of too many people.

Since it’s Autism Awareness Month, I want to acknowledge how many of us need and still seek positive affirmations from family, friends, loved ones, and society in general. One way we may accomplish this is to do something spectacular and unexpected.

Let’s make a comic book(s) together.

(As much as my health permits me,) This week, I’ll be posting some submission guidelines. First, I want to make something crystal clear: I don’t care about an “official” diagnosis. I won’t be asking you for health or insurance information to “prove” yourself. I like you just as you as are, and encourage you to be your best self. Be kind. Be mindful. Be well-read. Be considerate of others’ points-of-view.

My goal is to help build up the confidence and self-worth (not ephemeral ‘self-esteem’) of the next generation of comic book artists and writers. To this end, I’m proposing a comic book anthology of short stories made by our audience at Face Value Comics. Our team will provide editing advice, tips to overcome writers’ block, and content suggestions for no financial charge. I envision a comic book of ?? pages, with art and stories by other “white ravens.” I want the unseen to be seen. I want those of us with autism and mental health to grow as budding professionals deserving of recognition for our talents and attempts. We acknowledge how comic books are a multi-million dollar industry so our collective efforts may become more than idle busy work.

So, is this something of which you’d like to be a part? Please openly share this message with other social media channels. We welcome input and content from like-minded friends. The world already knows me. Let’s use this recognition to open doors for other new talents.

Oh- here’re my initial thoughts of the project:

  1. Pick a real-life historical “culture.” Examples may include, but are not limited to- British Knights, Celts and Vikings, Aztecs, Maori, Maasai, and more. How “historic” is historic? How about this idea: a high school student should be able to write an informative research paper about this group with citational references. In other words, don’t give knights laser guns (yet).
  2. Pick a fictional challenger(s) found in classic literature. Again, some examples include dinosaurs, robots, ninjas, aliens, pirates, vampires, etc. NOTE: “Zombies” are not found in the classic literature; they’re out of scope for this project. Sorry, not sorry- ask Kirkman if he’s doing anything like we propose, if zombies are your groove.
  3. All content must fall under suggestions found for PG-rated movies.
  4. Our team will assemble a good sampling of the content, based on artists’ attention to the initial directions (above). Submissions will fall under ONE PAGE, TWO PAGES, and FOUR PAGES of sequential comic book art.
  5. Next, we invite writers. They will interpret the visual art and craft a story based around it so our heroes win and tell a good story. Again, we will provide editing, suggestions, etc. free of charge.
  6. We’ll collect these stories into an anthology comic book graphic novel and release it as professionally-published content.
  7. “Compensation” and financial discussions must wait- that topic deserves its own post. Actually, so do most of these initial guidelines. Well, at least you know what’s coming later this week, eh?

I’ve been told to mention that Face Value Comics is a registered 501(c)3 non-profit organization; we can accept donations. I’m leery of this point, though; I won’t be bullied into publishing someone’s content based on a financial donation.

Today, my doctor gave me some not-good news. Rather than whine or beg for sympathy, I ask for your help to distract me from it. Let’s fight social stigmas. Together, let’s make something magical and build stronger skills…to show ourselves to the world how we are MORE than our diagnostic labels.

I hope the world stops defining me/us by what I am NOT, but rather who I AM.

TL;DR: I’m inviting persons with autism and mental health challenges to help make an anthology of short comic book stories.

Why we’re angry, dear Rosie…

Dear Ms. Rosie O’Donnell:

More than a week passed since we last chatted, albeit one-sided, about autism advocacy. Our fans wish you roaring success with your upcoming performance, and hope you are well. If people read anything more recent about you, I think many would be alarmed by the outpouring of hate directed at you regarding your armchair diagnosis of Barron Trump. We needn’t add fuel to that fire. Instead, I’m offering insight as a fellow rights activist and (self) advocate.

If people are angered by your lack of credentials to offer a diagnosis, I think their anger is misplaced. If people dislike you because of your own open identity, we aren’t likely to solve homophobia in this blog post. More importantly, I’m not sure you – or anyone who flippantly diagnoses someone with autism – understands the real damage.

You betrayed us, Rosie.

Within the autism community, many of us struggle with implied, unwritten social cues. However, most of us grew up and learned about the Golden Rule: Do unto others as you’d have them do unto you. Rosie, you broke that rule.

Spin your dialogue. Would you appreciate someone from the autism community saying another person was obviously gay because of how they look for thirty seconds? Even if that person’s experience and vigilance within the LGBTQ community would lend some credit to observations, is it anyone else’s right to out them as gay? If this approach is not okay with you, why is it okay for you to do something similar?

Hypervigilance with your own daughter’s autism diagnosis may lend you small credit, to recognize symptoms. Being good at computer work or mathematics makes someone autistic as much as (insert LGBTQ stereotype, here) makes someone gay. We fight hard to correct social misperceptions; please don’t add more misdirection.

We could presume you have nothing but benevolence towards a man and his family. Refresh my memory: is this the same man and his family whom you battled on Twitter during the Presidential Election this year? Do you doubt Barron Trump will have the absolute best medical care as the son of the United States President-Elect? Do you think you know better than a physician, Rosie? You act like you do.

…and that’s why people feel anger. May I offer a solution? Tweet how your intentions were born from compassion for a young person. Start a discussion about his father’s lack of understanding about autism, and the need for more openly autistic legislators and representatives. Share how you may have mourn(ed) Dakota’s lost potential following an autism diagnosis; we’ll understand and work through this very common grief with you. Invite more advocates to work with you, and stop making our advocacy work harder in 140 characters or less.

Let’s have tea next week, okay?

Be well and break a leg,

Dave Kot

Get off Your A$k, Government: Autism Education Reform

Dear Pennsylvanian Congressmen Mike Doyle, Scott Perry, and Seth Grove:

My name is Dave Kot, an autistic constituent living in York, PA. Perhaps you remember me? We met to discuss small business practices, and educational/therapeutic implications behind our internationally-award winning comic book. Now, I offer to help our government during a time of budgetary needs, when special education funding stands at risk.

Maybe I lost your interest with words like “autistic” or “comic book.” Typically, these two things wouldn’t seem complimentary. Certainly, most people would not opt for either adjective as a default prerequisite. Maybe you don’t want my help, and prefer to banter between Governor Tom Wolfe while our state budget – and intended beneficiaries of ear-marked funds – hang in the balance. I ask you to presume greater competence from an adult with autism, and continue reading for a probable solution.

Digital Camera
My apologies for the format of the photograph- I will upload a new picture of the award in the near future, showing its spiffy wood carvings!

This picture shows me holding an international award from Canada, which I received on last week. It recognizes my application of science to assist young readers with autism identify others’ emotions, to improve some social situations. Don’t you find it easier to negotiate with people who smile instead of scorn? Think back- who taught you what anger, or fear, or disgust looked like? Our comic helps readers identify these emotional states by themselves or with help. NBC Nightly News featured this work last year.

However, our non-profit mission goes far beyond comic books. Last year, my scientific application of facial feature recognition was recognized by the academic community. Unsolicited by me, an accredited medical journal (Journal of Autism and Developmental Disabilities) warmly reviewed the comic for my claims and validated my doctorial studies. To my knowledge, ours is the world’s first comic book to be critically reviewed by unbiased third parties for inclusion in a medical journal.

Do I have your attention, yet? Does it matter that I am also clinically diagnosed with autism (technically, “Asperger’s Syndrome”)? Do years of graduate and post-graduate work matter? Do several international awards and prominent global grass-roots leaders within my circles matter? Does inclusion in a medical journal matter? If none of these things matter to you, I lay my ‘trump’ card (no relation):

Join us. I’ve developed fantastic relationships. This spring, the Dover Area School District Supervisor (Kenneth Cherry) and Supervisor of Special Education (Dave Depew) and our team will meet. We will begin formulating special needs curriculum using the exact same scientific theory about which I wrote. Does this invitation interest you? How about now, Congressmen:

Last spring, the Dover Areas School District School Board unanimously voted to adopt facial feature recognition (read: the science behind our comics) as part of its special needs classroom initiative. Some people may think, “…what does that vote have to do with me?”

Expert analysis by people I consider smarter than myself predict how implementation of facial feature recognition could be used to GAIN about $1,000 to $1,500 PER classroom PER district PER year. Would you like to know how? This answer will require an in-depth presentation of materials, like my wife and I offered the Dover Area School District. Suffice to say, this net increase to special education can occur without adding ONE cent to the typical taxpayer, and insulates itself against future federal or state budget changes or cuts. Over time, analysis suggests how Dover Area School District will be the first school district able to offer graduating students with special needs a tax-free grant for further education or other personal costs. Imagine- just by implementing my well-vetted research, we could offer a high school senior money for college textbooks, or a new suit for job interviews, etc. We also push school choice by offering competitive education.

Would you prefer to affect positive change for students and families with special education needs, or do you prefer the political stalemate and barbs between yourselves and Governor Tom Wolfe? Please make no mistake- I am largely non-political and don’t care who gets credit for this work. We can and should share in good news, regardless of political affiliation. However, things could be done faster with Pennsylvania’s Congress (and the U.S. Congressional Autism Congress?) in tune with this proposed goal, to replicate it wherever it may be useful.

Congressmen, I invite you to witness scientific, economical, and educational change poised to happen under your watch in your respective areas of governance. I thank you for your assistance in my business matters, your praise for my work as an adult with autism, and now offer to pay it forward to help our community and state. Will you accept my invitation and lay down rhetoric for real change? Will you trust a person with autism who offers valid options for change? In closing, I’ll simply invoke the name of Temple Grandin- a fellow academic professional with autism whose autism allowed her to see things differently and whose courage changed an entire way of business. I am not Temple Grandin, but I am Dave Kot. I can help you help Pennsylvanian and United States’ special education programs.

Please continue the discussion via this social media source, or email us at: Angie@FaceValue.US

Thank you for your time and interest, and Happy New Year!

Be well,

Dave Kot

Autism, Tragedy Takes No Holidays

 

By now, you may have learned about the tragic outcome of a nationally-broadcast search. On New Year’s Eve, a five year-old boy with autism went wandering from a family home. At your own comfort, at your own time, read more about the story, here: http://ow.ly/WydPq

I am very sad, and rather inconsolable at the moment. I do not have words to express my sympathy. Instead, I will try to do what I do best: teach.

If I were wealthy, I could throw money at the problem. If I were a politician, I could probably make some radical promises to ensure future safety. Since I am neither of these things, I may have limited options. Fear may guide my decisions. Instead, I will teach.

Tomorrow, I will host a family fire drill in our home. I suppose I could research a lot of different resources and find a spiffy worksheet, but I opt for raw emotion in real time.

FIRE DRILL PREPARATION

  1. Coordinate. With my partner, we will schedule a time for our family fire drill. Together, we will inform our neighbors, as to raise awareness and reduce panic. I’ll also place small traffic cones in our neighborhood, in hopes of reducing speedy passers-by.
  2. Preview the Activity. About an hour before the scheduled event, we will review casual terms of fire safety with the family. These things would include what a smoke detector sounds like, how to escape a hot/smoky room, and where to collectively meet. We will prompt correct answers, and build confidence.
  3. Hold the Family Fire Drill. At the planned time, we set-off the smoke detector, and time our exit.
  4. Review. After the fire drill, we will sit down with hot chocolate (hey, it’s going to be cold tomorrow) and discuss why we did things the way we did. Ask for input from the family. Learn their comfort levels and try to reduce anxiety. Reinforce how proud we are of the kids to manage their own safety. Since these safety drills can inspire fear, we will reduce this anxiety by playing a family game or similar bonding activities. My partner and I must instill faith and trust in our ability to lead during a family crisis, like a real-life fire/smoke emergency.
  5. Read visitor comments to this blog post. I will continually edit this document with accredited sources. Thank you for reading this update.

I’m quite certain this list looks more like a rough draft, and I probably missed some key points. Feel free to suggest other things we could do as a family, but I simply ask you first…

PLEASE COMPLETE YOUR OWN HOME FIRE/SMOKE DRILL BEFORE COMMENTING ON MINE. Then, please advise.

I refuse to allow fear-mongering about autism, despite this tragic story. We must be motivated by hope, and find some measure of control within ourselves. These are the best way to insulate against fear: learning and empowerment.

 

New Year Autism Opportunities

Happy New Year! One of my personal/professional goals was to read more new theories about coping with autism. At Christmas, I got a special gift from my friend, Dr. Rob Melillo. He asked me to review his latest book!

I’m humbled and honored by his invitation. Dr. Melillo’s the world’s most-quoted author on neurodevelopmental disorders. Soon, I’ll share my thoughts about “The Disconnected Kids Nutrition Plan” on this blog.

drrob

Instead of bragging, I want to remind our fans how this is a shared journey. Whenever anyone tells you or a loved one – with or without autism – you “can’t” do something you want to do, you’ve an opportunity to positively change their perceptions. I have autism. Because I have some poor social experiences, I lost (too) much in my personal and professional life. We could commiserate for days about autism, but I offer a more productive experiment:

Be the change you want to see in the world,” said Mahatma Gandhi. How do we do this work, to change social opinions about autism? “A journey of a thousand miles begins with one step,” retorts Lao-Tzu. January is rife with planned promises for the future. What will you be doing to help yourself or loved ones feel safer, feel more welcomed and valued, and feel more successful? I’m listening more, reading more, and writing more good stuff.

Join me.

Open Letter to U.S. Congress

Dear Congressmen Doyle and Smith, and Respected Members of the U.S. Congressional Autism Caucus:

I write to you as an autism self-advocate. While my local representative, Congressman Mike Doyle (Co-Chair), and I met this summer, I bring new concerns to you all.

Recently, price spikes of certain prescription medicines caused alarm from the economic and health care sectors. Now, without prediction, some health care providers must cut generic medication from their formularies because of inflated cost. Some doctors prescribe medications to treat acute symptoms or other diagnoses for people with autism. I would like to know how the Affordable Care Act is insulated against future cost cuts of very commonly prescribed medications.

Congressmen Doyle, I’d like to revisit your invitation to meet and address more of your colleagues. Since we last met, I’m happy to share how my research into facial feature recognition for persons with autism has been vetted in a scientific medical journal! With so many budget decisions before our legislature, perhaps now might be a time for me to discuss the (special) education cost savings/surplus model with you; it’s the same model that received unanimous votes from our local school district this year.

Finally, I ask for an opportunity to grow beyond my comfort level. I am just a man. Nobody expected how a comic book would thrust me into international spotlight for autism awareness and acceptance. I’ve a social responsibility to use my fame and (self) advocacy mission for good use. For example, I’ll share this letter through all of our social media outlets, as an example of how to address civil leadership. If/when I meet with you, may I bring some friends who would quell my anxiety and lend their voice to mine if I tire? (After this letter hits Facebook,) May I bring one-thousand like-minded friends discuss the future of autism advocacy? I encourage everyone reading this letter to seek healthy relationships between civil leadership and autism advocates at any level.

Be well,

Dave Kot

DEAR SANTA CLAUS

Dear Santa Claus:

This year, I have tried to be a good boy. Our family made some great memories, and the children feverishly write and re-write their Wish Lists with wide eyes. Although I’ve endured some significant health threats, I find myself humbled by the experiences. In 2015, I want to ask you for some very special gifts – gifts for me and for the world.

Will you please bring me solid definitions? Many of our advocacy goals wilt against undefined or misinterpreted words. We fight wars with bullets and words, and inflict more harm with words, especially on social media. Without shared understandings, we risk continued fragmentation in any advocacy path we take.

Gender and racial identity seems as fluid as a rushing river. Too many people cling to words like “man” or “woman” or “marriage” or “race” or “special needs” without an acknowledged definition, or dangerously presuppose their definition reigns supreme. Perception becomes reality. A lot of our words used to describe a human condition take root in medical definitions. Laws try to reinterpret these definitions with little success. Worse, some words pre-date codified laws yet have semi-religious or spiritual connotations which not everyone shares. We lack cohesive, shared goals on topics that divide us because of unclear definitions. Will you please help us acknowledge language barriers within a shared spoken tongue? While we may still disagree about action or outcomes, we may do more good works if we can first recognize glaring deficiencies in our vocabulary.

Will you please bring me more compassion, too? We seem to be running low, as a society. Some groups seek racial or spiritual equality by tearing down non-members. Sometimes they recruit young people into their campaigns of prejudice despite new laws or better understandings of scientific fact. For example, a lot of information exists to discredit a long-standing argument about vaccinations’ link to autism. However, a parent of a newly-diagnosed child with autism needs compassion and support, not scientific pie charts and lectures. Despite any amount of overwhelming evidence, I cannot flaunt data to a parent whose child talked and walked prior to a vaccination; they deserve and need answers to solving their own bereavement of a childhood that may not be as typical as planned. They need solutions to new challenges in communication, in education, in self-care, and maybe many more areas. We need definitions, Santa, but also the compassion to wield those definitions. Children need more compassionate adults who stop behaving like entitled children themselves.

Without sounding greedy, may we also have more leadership who better understands these first two requests? It would be great if such a leader were also autistic, because we lack representation. Our Founding Fathers fought a great war because of such gaps in government; we cannot expect neurotypical leaders to fully understand the economic and social variables influenced by an autistic life. Maybe having equal representation could mean the same moneys get shared. A recent study now suggests that autism impacts 1 in 45 people. Knowing that only 1-in-10 autistic adults is currently gainfully employed should draw more eyes into long term planning.

Instead, we go to Twitter to decry how #BlackLivesMatter using 140 characters or less. Again, because of definitions, even this social movement finds itself mired in confusion and political trappings. Too many people misread the slogan as: “ONLYBlackLivesMatter.” Conversely, nobody would hashtag a phrase like: TooManyBlackLivesHaveBeenLostToNonBlackPoliceBrutalitySoWillSomeonePleasePayAttentionToQuestionableGovernemntalSponsoredGenocideBecauseBlackLivesMatterToo. Although cumbersome, this statement more accurately describes the Black Nationalist movement rooted within #BlackLivesMatter. When an unarmed 6 year old boy with autism was murdered in his car by police, I hoped that #BlackLivesMatter could be an ally. Since the boy was non-Black, I can expect no help from Black Nationalists, according to their own website. Add to the fact that the alleged murderer IS Black, I cannot expect help from #BlackLivesMatter, regardless of their mission against armed and reckless police with personal agendas. When #BlackLivesMatter hashtags claimed recent Parisian terrorism was a white-on-white crime, I recalled Malcolm X’s response to President Kennedy’s assassination. I also remembered a great poem about segregated victimization and abdicated defenses during World War II. When will they come for people with autism, and who will be left to stand with us? Honestly, we should rally as human beings when any threats seems to come for any one of us, regardless of height, weight, pigmentation, or self-realized identity. Somehow, by misappropriating now-ambiguous words like “white” or “woman,” we dehumanize the situation where HUMAN rights are concerned.

Black. White. Autistic. Person with Autism. Boy. Murder. By itself, each word may solicit a call to action. Blend these same words together in any combination, and some people will deny help they could give. Some people will be confused by what we need when we ask for help. Again, Santa, we lack shared definitions and enough compassion to supersede or suspend our mortal-made definitions. This Christmas, will you please bring me better operative definitions and shared compassion? I promise to share!

When a fan visits us at a comic book convention and identify themselves as “high-functioning,” what am I supposed to do with this abusive identity? Should I hold up a picture of Albert Einstein and correct their interpretation of “high-functioning?” Should I point out how, despite my own autism diagnosis, I’ve sold more published books and received more international awards than 90% of the people coming to see me? While harshly accurate, this approach does nothing to build our community, yet perpetually bragging how people should automatically presume more competence than our peers is equally damaging. Again, definitions and lack of compassion to use those words is harming our people, our country, and our shared world. We find ourselves grasping at any words to individualize us, and neglect our own self improvements. We expect words to clearly define who, what, when, where, why, and how we are…but not everyone uses these same definitions. Santa, my health and time spent understanding more about advocacy has sorely impacted our own production of comic books and toys. I need better understanding of socially-divisive words, and more compassion and humility to use words that forge real progress. I apologize in advance if I mis-spoke (mis-typed?) words that elicit anger, contempt, disgust, or fear. I am just a man, and am trying to describe what I want for the holidays- a better world, but forgive my fumbles with ambiguous words.

Thanks, Santa Claus. Please be safe when travelling this year! We’ll set out some cookies and milk for you, as always.

YOU Decide – I Won’t Say a Word

In our politically-correct world, certain adjectives cannot clearly identify some groups. For example, ‘African-American’ replaces ‘person of color.’ Likewise, ‘mental retardation’ stirs ire, so we use ‘intellectual or developmental delays.’ Gone too are words like ‘actress’ and ‘stewardess;’ use ‘actor’ and ‘flight attendant,’ respectively. By example, let’s discuss something we can change: public perceptions about autism. Professional clinicians once labeled ‘homosexality’ as a mental illness! If social change can re-correct misinformation at a medical opinion level, I have hopes that my simple suggestion may also bear weight.

 

As it stands, I fear the word “non-verbal” encapsulates too many negative stereotypes. Simply stating that a person with autism is non-verbal damages public opinions (read: neurotypical persons’ reactions). I see two things immediately incorrect by continuing to refer to persons with autism as NON-VERBAL.

 

Problem One:

Did you take the Scholastic Aptitude Test (SAT)? No, we’re not engaging in discussions about cultural dis/advantages about the SATs at this moment. Think back – maybe even waaay back – to your scores or scores of someone close to you. Usually, SAT results fell into two categories. Do you remember the Math section of the SATs? What was the other categorization? For me, I also got a VERBAL score. Nobody asked me to talk during the test. In fact, testers were forbidden to speak during the SATs. Nobody spoke with me while I took the test, aside from a procter’s instructions.

 

The problem with labeling someone as “non-verbal” is we completely dismisses any written proficiencies with communicable language. Famous self-advocate Helen Keller was not non-verbal, even though she was mute. She knew words and communicated their value to (sometimes limited) audiences. I cannot think of Helen Keller’s experiences and still consider her “non-verbal.”

I offer to use the word “vocal,” to replace “verbal,” and more correctly capture the social interactions with someone who does not often speak aloud.

 

Problem Two:

At what percentage do we equate anything with an adjective, “non?” If I’m a non-smoker, I won’t smoke tobacco. If a book is listed as “non-fiction,” we expect it to include some historical realism and facts. If a person is non-verbal vocal, we may (incorrectly) assume that this person does not talk at all – ever. I believe this assumption undermines abilities of some people with autism who have limited, but some, vocal skills.

 

At what percentage does “non” capture? If my glass contains 99% fat-free milk, is this non-fat milk? Would things change differently at 98% of non-something or other? How about 95%, or 90%? Does NON really mean zero-percent 100% of the time?!? If so, what hopes do we dash by referring to persons as “non-verbal” or “non-vocal?”

 

From ancient Greece, we have an interesting word: PARA. This prefix means beside; next to, near, from; and against or contrary to something. I like the words, “near,” “from” and “against or contrary to” to better explain vocalization skills for some persons with autism. Does “near-vocal” more accurately, more clinically, explain some behaviors of people with autism that you know, or does using “non-verbal” paint a better picture or empowerment? If you wanted to become an evil dictator, which word would you select to undermine a group’s potential?

 

To this end, I suggest we use words like “para-vocal” to better explain future social communication expectations.

 

Use “para-vocal” instead of “non-verbal.” Otherwise, we may be unintentionally limiting our collective expectations about persons with autism. Otherwise, we may grow to expect absolutely nothing from someone we list as “NON.” Let’s presume competence. Some people with autism may never willingly choose to talk. However, we owe it to everyone, including ourselves, to think of many wonderful abilities and skills autistics have, and focus less about what a select group does not have.

 

If you like this idea, please share it and use it yourself. I’m not copyrighting this word. I will use it to explain our comics character, Myra. I will use “para-vocal” to explain this aspect of autism which I describe today. Do you like it? Will you use “para-vocal,” please?

 

Change and acceptance begins with us. To my friends at ASAN (Autistic Self Advocacy Network), this idea falls in line with “nothing about us without us.” Can ASAN stand behind this idea of compassionate and clinically-accurate autism descriptions? Will ASAN use para-vocal instead of non-verbal in the future?

 

…or, we can go back to using “non-verbal” in literature. I would be wholly within clinical accuracy to refer to my African-American best friend (Sky Owens, our comics artist) as “non-white.” How far would that very factual adjective get us as a society? How would my friend respond? Look, I’m quite certain that some autistic people who don’t easily or willingly talk won’t say anything, right? Society questions the “verbal” skills of some autistics, I find more glaring verb and adjective omissions from neurotypical so-called experts.